Changing the Lives of Patients with

Myotubular and Centronuclear Myopathies (CNM)

Privacy Policy

Dynacure uses this website to communicate with the public about its mission, dedicated to the research of new treatments for patients affected by serious orphan disorders.

We wish to inform you that, in the course of its activities, Dynacure may collect and process personal data (personal data is defined as any information about natural persons, either directly identified by their name, or indirectly identified, e.g. by a date and a place of birth).

Dynacure is the legal entity responsible for defining the purpose and the means of this processing (the data controller). In any case, we are committed, in accordance with the applicable data privacy laws, and in particular with the Regulation 2016/679 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (General Data Protection Regulation), also known by its acronym “GDPR”, to inform you about the processing of your personal data, your rights and how you can exercise them.

As a user of this site, please find below the information regarding the processing that is made from your personal data:

Who is accountable for the processing of your data?

Bioparc III
850, Boulevard Sébastien Brant
F-67400 Illkirch-Graffenstaden

Under which condition provided by the law do we process your data?

Unless your consent is required by a cookie banner, before the deposit of a cookie which will collect and transmit data from your computer or mobile device (such as the IP address of your computer – see also our cookie policy), the processing will be performed on the basis of our legitimate interest, as a controller of the data. Our interest is to communicate with individuals from the public strictly for the purpose of our company mission. This legal ground is used since the purpose of this processing is not to target you with solicitations or advertising made against you.

What is the purpose of the processing?

Your data is processed to manage your preference when accessing Dynacure’s website, and to optimize the performance of the navigation according to the computer that you are using.
Your data is also used by Dynacure to measure the audience of its website.

What categories of personal data do we collect?

The IP address of the equipment you are using when connecting to our web site; the date and time stamp of your connections to our web site; the technical data related to your equipment and navigator; your user preferences (e.g. language), your interactions with the web site (e.g. the pages you have visited).

Who are the recipients of your data?

The recipients of your data are exclusively members of the personnel of Dynacure, or services providers who processe your personal data exclusively on our behalf and according to our instructions.

Is your data transferred to countries outside the European Union or to international organisations?

Your personal data collected from the website remains in the E.U. We do not transfer it to any country located out the E.U. or to any international organisation.
Please note however that when you use one of the link provided by our website to the social networks on which Dynacure is present (Facebook or Twitter), you are presented the social network’s privacy policy, where you can find out where your data collected by the social network is stored and how you rights are guaranteed.

For how long do we store your data?

The data collected by the cookies is stored for a maximum of 13 months on your computer, and for a maximum duration of 2 years on our website server .

What are your rights, and how to exercise them?

You can exercise at any time a right of access, a right to rectification or to erasure of your data. If your consent has been required before collecting your data, you can at any time decide to remove this consent and also ask for the portability of the data that you have provided. You can also, at any time, object or exercise a right to restriction of the processing of your data.
For any request regarding the processing of your personal data, please contact us at the following email address:
If you consider that we have not properly respected your rights, you have also the ability to lodge a complaint with the data protection supervisory authority from the country where you are established (if you are located in the European Union). If you are located in France, or outside the European Union, your complaint can be lodged at the “Commission Nationale de l’Informatique et des Libertés” (CNIL), on: