When Monika and her husband Tomasz’s first son came into the world, “Nothing indicated before that this birth would be different from others that are performed in every hospital,” said Monika. “Unfortunately, when he was born there was no joy, only fear and pain in our hearts as our baby struggled to breath, did not move and we had no idea why.” The new parents and doctors continued their care of Kacper, without an official diagnosis. At two-months-old, he suffered cardiac and respiratory arrest, which resulted in very severe cerebral hypoxia. From that moment, he stopped moving and was dependent on a ventilator and chronic respiratory therapy. He remained hospitalized for nearly two years. He eventually moved home under the full time care of his parents, and Kacper passed away peacefully in his sleep at seven years old.
That same year, shortly before their first son passed away, Monika and Tomasz welcomed their second child, a healthy boy that they named Karol. “We were not afraid of another pregnancy,” said Monika. “Doctors assured us that our first son’s disease was purely accidental, that it was not genetic or hereditary.” A few years later, their third son, Wiktor was born. Unfortunatley, upon his arrival, Wiktor was lifeless, in respiratory distress and “our nightmare began all over again,” said Monika.